Hi everyone!
It's been a long time, I know. I hope you have all been well, or as well as can be.
A lot has happened this year. I had my RNS (Responsive Neurostimulator) implanted last year. Since that time, my hopes for seizure reduction fluctuated. At first, the count decreased, but then it went up again, much higher than before. Now, it is coming back down. I am still not satisfied. There some factors that cause my seizures: temperature changes, especially from warm to cold and extreme heat from the sun or intense exercise; stress; and laughter, especially when something hits my funny bone. I am working with my doctor to adjust my medications and RNS settings.
Meanwhile, I keep hope alive...
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