Sunday, May 17, 2015

Asian Americans and Epilepsy


May is Asian Pacific American Heritage Month.  3 of every 200 Asian Americans have epilepsy, if not more.  Asian Americans are less likely to report that they have epilepsy than the population in general because of the stigma attached to it.   

In the Asian American community, there is probably more misunderstanding and perpetuation of myths.  Many still believe that epilepsy is caused by evil spirits and only trust so-called traditional cures:  herbal treatments or exorcism.

Friday, May 8, 2015

Announcement--Epilepsy Pipeline Community Conference 5/16/15

I came across this link about the upcoming Epilepsy Pipeline Community Conference which will take place in Aventura, Florida on Saturday, May 16, 2015 (in about a week). 

It is a free, all-day program with many epilepsy experts.  They will be speaking about issues regarding treatments (medications, surgeries and devices, marijuana, etc.) and living with epilepsy (behavior/mood, self-management and safety, and family relationships).  There will also be an opportunity to meet people and network.

Even though it is free, you do need to register.

The address for the conference is:

Turnberry Isle Miami Hotel
19999 West Country Club Drive
Aventura, Florida

I highly recommend going if you can.  If you do go, please comment and tell me your thoughts about it.

http://www.epilepsy.com/make-difference/get-involved/2015-epilepsy-pipeline-community-conference

Friday, May 1, 2015

Comprehensive Epilepsy Medication List

I came across a pretty comprehensive anti-seizure medication list on the Epilepsy Foundation website.   Since most people with epilepsy take medications to treat their seizures, this resource is invaluable.  It provides the generic and brand name information about the drugs and addresses questions such as

“how does this medication work?”
“what are the most common side effects?” 
“what are the most serious side effects?”
“how does it affect women and the elderly?”
“how does it interact with other drugs?”

The list goes on and on, and covers many, many medications.

It is an excellent list for those interested in doing research on new medications.

Epilepsy Walk Report


The Sonic Seizure Stoppers!  Me, my friends Kim and Deb
The Epilepsy Walk was a lot of fun—the weather was not too sunny nor too hot, as has been the case in the past.  The emcee for the event was Executive Director of the Epilepsy Support Network Janna Moore.  She recognized the sponsors and top fundraisers for the event as well as the excellent epileptologists in the area who serve us.


She also introduced this year’s special guest, Rob Machado, super-surfer and environmental activist.  It was an honor to have him at our event this year.

She rallied the crowd and we set off walking around Tewinkle Park in Costa Mesa, California.  It is a kid-friendly park, with a safe, padded playground and a nice walking path.  After walking a round or two, many people played games at the carnival, bought raffle tickets, and/ or made bids at the silent auction.

At 11:30 am, lunch was served—either a hamburger or hotdog with beans and macaroni, a drink, and a cookie for dessert.

The event closed at 2:30 pm.  So far, $104,000 has been raised thanks to all the generous donors we’ve had. 

And if you missed out, there is still time to show your support by donating.


Thanks again for your support!

Friday, April 24, 2015

I’m Back!

I’m back and wanted to let you know I had a great time in Spain.  The trip was pretty hectic at times, but we did have some free days when we were able to do things on our own.

Among other things, we visited many cathedrals and palaces and went to an olive farm where we had a tasting.

Now I am gearing up for the Epilepsy Walk tomorrow.  I can’t believe it is already here!  It will be a fun event, getting together with friends, walking for epilepsy awareness.

Thursday, April 9, 2015

On Vacation

I want to let you all know that I will be on vacation from tomorrow until April 19th.  My family and I are going to Spain with a tour group.  We will visit Barcelona, Madrid, and Sevilla.  

I will be back after I return and my jet lag wears off. 

¡Hasta luego!

Thursday, April 2, 2015

Young Epilepsy Awards—United Kingdom

I came across a blog post by Emily Donoghue about the Young Epilepsy Awards of 2015 based in the United Kingdom.

On March 26 (Purple Day), Young Epilepsy, the official organization dedicated to helping children with epilepsy in the UK, gave its 3rd annual Champions Awards.

The event celebrated the achievements of several young people and the people who have influenced them to promote epilepsy awareness.  British journalist and newsreader Nicholas Owen hosted the event.  Many celebrities were also present: Olympian James Cracknell, actors Cheryl Fergison and Himesh Patel, athlete Dai Greene, and footballer (soccer player) Leon Legge. 

You can read more about it on Emily’s blog


Emily’s Perspective: At the Young Epilepsy Awards 2015

Young Epilepsy