Showing posts with label Living Well with Epilepsy blog. Show all posts
Showing posts with label Living Well with Epilepsy blog. Show all posts

Monday, March 4, 2019

March 2019 Epilepsy Blog Relay Post Uploaded


Hi Readers!

I want to let you know that my post for the Epilepsy Blog Relay is uploaded on the Living Well with Epilepsy website now. The topic is "A System of Support." I hope you enjoy reading it.Let me know what you think!

Thanks!



Saturday, March 2, 2019

Epilepsy Blog Relay--March 2019


The Living Well with Epilepsy Blog Relay has begun for March 2019. Enjoy reading all the different perspectives about this disease and learn how people cope with it.

I have a byline on the Living Well With Epilepsy website, and will post my story there instead of here as I have in years past.

Thanks for reading!

https://livingwellwithepilepsy.com/blog
https://livingwellwithepilepsy.com

Wednesday, November 28, 2018

Epilepsy Blog Relay



Hi everyone!

It's almost the end of November, National Epilepsy Awareness Month, but the Epilepsy Blog Relay run by Living Well With Epilepsy is not over yet.

Please continue to follow along on https://livingwellwithepilepsy.com until the end and join the Twitter Chat on December 6 at Noon ET. (#LivingWellChat)

For the full schedule of bloggers visit https://livingwellwithepilepsy.com/epilepsy-blog-relay/november-2018-participants.

Sunday, June 10, 2018

Epilepsy Blog Relay Post—Technology and Epilepsy

This post is part of the Epilepsy Blog Relay™, which will run from Nov. 1 to Nov. 30, 2017.  Follow along!


We have come a long way in treating people with epilepsy. From crude medications and incantations we now know are useless, we now have an abundance of drugs specifically targeted toward different types of epilepsy. Also, we have various types of surgery as an option as well as implants including the VNS (vagus nerve stimulator) and the RNS (responsive nerve stimulation). Who knows what may be next?

Friday, November 17, 2017

Epilepsy Blog Relay—Thoughts on CBD (Medical Marijuana)



This post is part of the Epilepsy Blogger Relay™ which will run from November 1st through November 30th.

I am a difficult epilepsy patient. My seizures are not under control. I am thankful that I do not have tonic clonic (grand mal) seizures, and that usually they are short and not too bothersome. However, once in a while, I do get complex partial seizures and lose consciousness. These are the ones that irritate me the most.

Friday, November 3, 2017

Epilepsy Blog Relay—November 2017



Did you know that Melanie Griffith has epilepsy? The Living Well with Epilepsy blog is once again hosting its month-long Epilepsy Blog Relay and this story is what the first blog entry is about.

I hope you follow along and read about the experiences of different people dealing with this condition. It covers such a wide spectrum, as there are more than 40 types of seizures and more than 30 types of epilepsy syndromes.

It will give you a sense of what their lives are like, as patients or caregivers, and the difficulties they have to face each and every day.

Resources

Sunday, March 5, 2017

Epilepsy Blog Relay—Importance of Caregivers




This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along and add comments to posts that inspire you!

Epilepsy is scary and takes a team effort.  This includes caregivers—that is, parents, spouses, siblings, grandparents, other relatives, or friends/guardians.  They are the unsung heroes in the fight to gain seizure freedom and help the person with epilepsy achieve a fulfilling life.

Thursday, March 2, 2017

Epilepsy Blog Relay—Living Well with Epilepsy


The Living Well with Epilepsy blog has started another month-long Epilepsy Blog Relay.  It started yesterday and will run through the end of March 2017.  I will be participating on March 6.

I hope you follow along.  It will give you an opportunity to learn more about epilepsy from different points of view.  The link to the participants is below. Happy reading!


Monday, February 29, 2016

Epilepsy Blog Relay, March 2016


The Living Well with Epilepsy blog is hosting its second Epilepsy Blog Relay starting tomorrow in the month of March.  Bloggers from all over the world will be posting their insights about epilepsy throughout the month.  I encourage you to follow along!

My post will appear on March 5th

Monday, November 30, 2015

Epilepsy Blog Relay Twitter Chat


The end of November has arrived, and the Living Well with Epilepsy Blog Relay is drawing to a close.  They will host a Live Twitter Chat (#LivingWellChat) to celebrate the end of Epilepsy Awareness Month.

Tuesday, November 17, 2015

Epilepsy Blog Relay: Technology—Seizure Alert Devices


This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you!

At the recent “Talk to the Docs” program that I went to, one of the topics of discussion was epilepsy technology.  Some of the doctors on the panel are trying to get funding to do research in this area, but so far have not been able to find any grant money.  This is just another example of how seriously underfunded epilepsy research is. 

Sunday, May 31, 2015

Coming Up: Epilepsy Blog Relay—Stigma and Epilepsy

For the past few years, the Living Well with Epilepsy blog has designated June as Epilepsy Stigma Awareness Month.  This month, they have initiated a Blog Relay in which bloggers/social media participants have been assigned a particular day to post a column about epilepsy stigma on their websites.  Then, they will connect with the next day’s website.

My blog post for the relay will appear on June 7.  Feel free to look at the postings for the entire month as it goes on.  Let me know what you think!

To follow along, use the hashtag #EpilepsyBlogRelay on Twitter or visit Facebook at http://www.facebook.com/livingwellwithepilepsy. To see the full schedule, go to http://livingwellwithepilepsy.com/epilepsy-blog-relay-2015.

I am looking forward to it.  I hope you are too!