I want to let you know that my post for the Epilepsy Blog Relay is uploaded on the Living Well with Epilepsy website now. The topic is "A System of Support." I hope you enjoy reading it.Let me know what you think!
The Living Well with Epilepsy Blog Relay has begun for March 2019. Enjoy reading all the different perspectives about this disease and learn how people cope with it.
I have a byline on the Living Well With Epilepsy website, and will post my story there instead of here as I have in years past.
It's almost the end of November, National Epilepsy Awareness Month, but the Epilepsy Blog Relay run by Living Well With Epilepsy is not over yet.
Please continue to follow along on https://livingwellwithepilepsy.comuntil the end and join the Twitter Chat on December 6 at Noon ET. (#LivingWellChat)
This post is
part of the Epilepsy Blog Relay™, which will run from Nov.
1 to Nov. 30, 2017. Follow along!
We have come a long way in treating people with epilepsy.
From crude medications and incantations we now know are useless, we now have an
abundance of drugs specifically targeted toward different types of epilepsy.
Also, we have various types of surgery as an option as well as implants including
the VNS (vagus nerve stimulator) and the RNS (responsive nerve stimulation).
Who knows what may be next?
This post is part of the Epilepsy Blogger Relay™ which will
run from November 1st through
November 30th.
I
am a difficult epilepsy patient. My seizures are not under control. I am
thankful that I do not have tonic clonic (grand mal) seizures, and that usually
they are short and not too bothersome. However, once in a while, I do get
complex partial seizures and lose consciousness. These are the ones that
irritate me the most.
I
hope you follow along and read about the experiences of different people
dealing with this condition. It covers such a wide spectrum, as there are more
than 40 types of seizures and more than 30 types of epilepsy syndromes.
It
will give you a sense of what their lives are like, as patients or caregivers,
and the difficulties they have to face each and every day.
This post is part of the Epilepsy Blog Relay™ which
will run from March 1 through March 31. Follow along and add comments to
posts that inspire you!
Epilepsy
is scary and takes a team effort. This
includes caregivers—that is, parents, spouses, siblings, grandparents, other
relatives, or friends/guardians. They
are the unsung heroes in the fight to gain seizure freedom and help the person
with epilepsy achieve a fulfilling life.
The
Living Well with Epilepsy blog has started another month-long Epilepsy Blog Relay. It started yesterday and will run
through the end of March 2017. I will be
participating on March 6.
I
hope you follow along. It will give you
an opportunity to learn more about epilepsy from different points of view. The link to the participants is below. Happy reading!
The
Living Well with Epilepsy blog is hosting its second Epilepsy Blog Relay
starting tomorrow in the month of March.
Bloggers from all over the world will be posting their insights about epilepsy
throughout the month. I encourage you to
follow along!
The
end of November has arrived, and the Living Well with Epilepsy Blog Relay is
drawing to a close. They will host a
Live Twitter Chat (#LivingWellChat) to celebrate the end of Epilepsy Awareness
Month.
This post is part of theEpilepsy Blog
Relay™which will run
from November 1 through November 30. Follow along and add comments to posts
that inspire you!
At
the recent “Talk to the Docs” program that I went to, one of the topics of
discussion was epilepsy technology. Some
of the doctors on the panel are trying to get funding to do research in this
area, but so far have not been able to find any grant money. This is just another example of how seriously
underfunded epilepsy research is.
For
the past few years, the Living Well with Epilepsy blog has designated June as Epilepsy Stigma
Awareness Month. This month, they have
initiated a Blog Relay in
which bloggers/social media participants have been assigned a particular day to
post a column about epilepsy stigma on their websites.Then, they will connect with the next day’s
website.
My
blog post for the relay will appear on June 7. Feel free to look at the postings for the
entire month as it goes on. Let me know
what you think!