Showing posts with label seizure freedom. Show all posts
Showing posts with label seizure freedom. Show all posts

Monday, November 1, 2021

Epilepsy Blog Relay November 2021




November is Epilepsy Awareness Month!

This means it is time for the November Epilepsy Blog Relay!  You can follow along at https://livingwellwithepilepsy.com/.

I am the lead blogger for the month. You can also read my full story at https://livingwellwithepilepsy.com/2021/epilepsy-blog-relay/nov-21-ebr-posts/5-tips-to-live-well-with-epilepsy.html.

Here is a snippet:

What does it mean to Live Well with Epilepsy? In an ideal world, there would be no epilepsy to worry about. But as it is, epilepsy is a fact of life. It is our challenge to live with it as best we can. Over the years, I have discovered a few tips that help me live well with epilepsy.

As a person with epilepsy, I wish I could be seizure-free. That is, I suppose, anyone’s hope in my position. Right now, I am seeing a seizure reduction, but I don’t want to jinx myself by saying I’m on my way!

The truth is, I still have short seizures almost daily, and just the other day, I had a big, complex partial seizure at work which incapacitated me. I could not respond to my coworkers. Understanding people and not being able to reply was extremely frustrating. When I finally recovered, I was ready to get back to work but knew better. I had to go home and rest. My mother picked me up and drove me home.  My big mistake was that I walked to work. I thought it would be good to get some exercise, and the temperature was in the low 80s. However, the heat was enough to trigger a serious seizure.

So, how do I try to live well with epilepsy? Here are 5 tips you can try to live well with epilepsy.

Monday, December 31, 2018

Happy New Year!


Wishing you all a very Happy, Healthy, and Prosperous New Year!

I hope 2019 brings more advances in epilepsy treatments and seizure freedom (or at least reduced seizures) to those who suffer from the effects of epilepsy.

With our advocacy, I am optimistic that the outlook will improve.

Tuesday, February 10, 2015

More on International Epilepsy Day

I came across this video from the World Health Organization (WHO) about epilepsy and the impact it has worldwide.  80% of people with epilepsy live in middle-to-lower income countries.  70% of people with epilepsy could be seizure free if they had access to care, but that is the problem for these countries.  This is what they call the treatment gap.  The WHO is working on closing this gap and providing access to services for people with epilepsy around the world.


I also found links to Epilepsy Regional Reports by the World Health Organization. They were published from 2004 to 2013.  They give a detailed account of what is going on in each area of the world.  

Tuesday, September 16, 2014

Surgery Options for Epilepsy

On Friday, I went to the epilepsy support group meeting of the Epilepsy Support Network of Orange County.  We had an excellent speaker,Dr. Mary Zupanc, pediatric epileptologist of Children’s Hospital of Orange County (CHOC) and University of California—Irvine.  She talked about new surgery options for epilepsy.