Sunday, January 31, 2016

Black History Month—African Americans and Epilepsy

February is Black History Month.  This is a time to celebrate the achievements of African Americans, but also a time to evaluate their status at this time and work to improve it.

It is true that slavery no longer exists and blacks Americans are not being whipped by white overlords several times a day.  However, it would be a false assumption to say that just because we live in the 21st century and everyone has equal rights under the Constitution, that African Americans truly are free and equal. Unfortunately, they experience discrimination in all facets of life, including education, social services, housing, employment, justice, and even the entertainment industry.  Finally, having good healthcare coverage is a major problem for many African Americans.

In our education system, starting from elementary school, African American children, mostly boys, are disciplined much more harshly than their Caucasian counterparts.  They are suspended more often.  Also, in 2012, 31% of African Americans high school students did not graduate on time, whereas the number for Caucasians was 14%.  The gap continues in college, where 61.5% of whites and only 39.5% of blacks earned their degrees (2004).

Without a supportive educational environment, African Americans will be disadvantaged in every other aspect of life.  Being singled out for their race will make it harder to succeed in life and makes them inclined to mistrust people of authority.  Many are denied employment opportunities because their names “sounded black.”  In terms of the entertainment world, you just have to look at the Academy Awards to see that minorities were completely ignored although there were many quality films and performances worthy of an Oscar.  It was enlightening to see African American winners at the SAG awards ceremony, however.

But most serious of all is the criminal justice system and healthcare.  Just as with education, infractions and crimes committed by African Americans are much more closely scrutinized and harshly punished.  If you are black, you always have to be aware of yourself.  A police officer could stop you for any reason or no reason at all.  On the other side, police officers or other white people seem to get away with whatever they want.  The number of hate crimes against African Americans seems to grow.  Lately, we’ve focused on the cases of Eric Garner and Michael Brown, but there are many more that we do not know about.

A lack of access to healthcare is most worrisome.  Without it, minorities get left out and are forced to live with medical conditions that remain untreated.  Only when an emergency happens, do they go to the hospital.  This is the most inefficient way of spending healthcare dollars.  Prevention and early detection are the first line of defense for lower medical costs and effective treatment.  The Affordable Care Act(Obamacare) has been helpful in providing healthcare to African Americans, but is threatened to be repealed.

Epilepsy is a difficult topic for anyone to deal with.  But when it comes to African Americans, the stigma is especially great.  More than 350,000 African Americans have epilepsy and about 24,000 new cases are diagnosed each year.  They are also more likely to experience status epilepticus and suffer from SUDEP.  According to a study published in the journal Epilepsy and Behavior, comparing Caucasians and African Americans with epilepsy, African Americans had overall poorer seizure control and were less likely to qualify for surgery.  They also tended to be skeptical about medications, viewing them as harmful and addictive.  On top of that, they highly mistrusted their healthcare providers, the people who were supposed to be helping them.

It will be difficult, but to combat this crisis, the African American community can work together with epilepsy networks, including healthcare providers, and get educated and remove the stigma. 

The greater challenge is attaining equality and eliminating discrimination in our society.  I do not see that happening overnight.  It I something we will constantly have to work for.

Resources:
SAG

African Americans and Education

Hate crimes

African Americans and Epilepsy

Disparities Between Caucasians and African Americans

ACA working for African Americans

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